About this event
We are inviting people affected by cancer or rare disease (including patients, carers and loved ones), anyone who has had a genomic test, or anyone with an interest in genetics or healthcare research to take part in a focus group.
The discussion will explore people’s views on linking how genomic data (information about our genes) to data already available for approved research studies in the Eastern England Secure Data Environment (SDE).
What will the focus group involve?
The focus group will be an informal, facilitated discussion where you can share your views, questions and experiences.
Thank you: £40 voucher per participant. Sign up is required.
You can take part if you’re 18+, live in the East Midlands or East of England and are willing to share your views. No experience needed.
Contact details
Voluntary Action Leicestershire, Newarke Street, Leicester, LE1 5SN
