Child and Adolescent Mental Health Service (CAMHS) – The Beacon Unit Enter and View

This report summarises the views of people across the East of England on the use of genomic data for health research.

Genomic Medicine is the study of how the information contained within a person’s DNA influences their health. This information can help identify if someone is at risk of certain diseases and how they might respond to treatment.

Healthwatch Norfolk was commissioned by Health Innovation East to work alongside Healthwatch Leicester and Leicestershire, Healthwatch Hertfordshire and Healthwatch Essex to explore people’s views on the use of DNA data from routine health tests for research within the Eastern England Secure Data Environment (EE-SDE). An SDE is a highly-protected digital platform that allows approved researchers to access sensitive health data securely. Currently, genomic data used in research relies on opt-in consent. We assessed attitudes towards using the existing NHS opt‑out model, already in place for other health data research.

Our team carried out an Enter and View at Sutton In The Elms.
See the attached report available for download.